1FCA IMPACT REPORT 2022
Impact Report
2022
2FCA IMPACT REPORT 2022
Letter from the Executive Director 3
Theme: Resiliency 5
Our Impact 4
Theme: Innovation 7
Theme: Partnership 9
Contents
3FCA IMPACT REPORT 2022
Dear Friends,
Family caregivers, who have been largely absent in our cultural dialogue and environment, are
now becoming more visible. They are featuring more prominently in movies, the media and in the
public square of ideas—a huge difference from just a few years ago.
More visibility, more opportunities to help
We’re learning that caregivers are performing more complex care and medical tasks at home,
that more young people are providing care to a family member, and that caregivers across diverse
communities and cultures need more relevant support and resources.
These insights are driving important changes in policy, health care and human services. In
fact, California has taken an unprecedented step by addressing caregiver impacts, concerns,
and needs as part of its Master Plan for Aging. This is a bold and future-focused effort by the
country’s most populous state—one that we hope will serve as a model to others.
As an organization that’s been a champion and advocate of family caregivers for more than 40
years, we couldn’t be happier with this growing recognition for the role.
In this time of growing need, we’re there for family caregivers
During the scal year 2021-2022, FCA continued to meet family caregivers where they are, with
the right resources at the right time.
We assisted more than 3,000 caregivers in the San Francisco Bay Area with direct services such
as counseling, personalized care plans, training, respite and support groups. Through online and
telephonic support, we helped many more across the country and now serve family caregivers in
all 50 states. In collaboration with our partners, we expanded online platforms, tools and data-
driven technologies to better serve caregivers along their caregiving journey.
These successes were made possible through the skilled and dedicated work of our incredible
team, and because of the commitment and generosity of our partners, funders and donors.
Thank you for joining us in creating a stronger, brighter future for family caregivers. We couldn’t
do this work without you!
Sincerely,
Kathleen Kelly
Executive Director, Family Caregiver Alliance
BOARD OF DIRECTORS
Athan Bezaitis
Amanda Breeden Warner
Amber Christ
Deborah Kan
Shruti Kothari
Mary Ellen Kullman
Catherine Lelong
Scott Peifer
Kathleen Raffel
Tiffany Riser
Wyatt Ritchie
Karen Sperling
Keely Stevenson
Celine Takatsuno
Ian Tong
4FCA IMPACT REPORT 2022
Our Impact
As the go-to resource for caregivers of adults with physical and
cognitive impairments, we occupy the unique role of serving caregivers
both locally and at the regional and national levels.
In 2021-2022, we assisted family caregivers in the San Francisco Bay
Area’s six counties* with one-on-one support, referrals to community
resources and other enhanced services. For caregivers outside the Bay
Area, we provided extensive online resources, expert guidance and
customized support.
*Alameda, Contra Costa, Marin, San Francisco, San Mateo, and Santa Clara
6,728
hours of assessment,
counseling, case
management, training &
other support activities
404
hours of training
to 59 clients
578
personalized
assessments &
care plans
1.75M
website visitors
from the US &
200+ countries
31,323
hours of respite
services to 406 clients
50
states in which we
have supported
family caregivers
2,274
hours of support group
assistance to 129 clients
2.1M
sessions
513
hours of individual
therapeutic counseling
to 110 clients
3.1M
pageviews
SAN FRANCISCO BAY AREA
FCA serves as the Caregiver Resource Center for the Bay Area, one
of 11 California Caregiver Resources Centers across the state. This
year we provided 3,104 local caregivers with support services.
NATIONAL
FCA established The National Center on Caregiving in 2001 to
advance policies and programs for family caregivers in every state.
Our website, caregiver.org, acts as a key hub for sharing resources
and information with caregivers everywhere.
5FCA IMPACT REPORT 2022
Expanding Access Through Virtual Programs
In response to public health protocols early in the pandemic, FCA
quickly pivoted to a remote support model, launching an expanded
suite of classes and events for family caregivers that augmented our
existing online and telephonic resources.
Since then, we’ve continued to adapt our programming to meet
caregiver needs—including an enhanced focus on young caregivers
and those from diverse communities. Here are some highlights from
2021-2022.
RESILIENCY
LET’S GET AWAY TOGETHER!
Interactive travel series
28 gatherings of 352 family caregivers
We expanded this hugely popular (virtual)
travel series to provide a fun activity for
caregivers and those who receive their
care. Participants are introduced to new
cultural destinations and activities from
around the world.
“
It’s difcult to manage all aspects of life while
being a primary caregiver. The resources and
expert information available from FCA has eased
a lot of anxiety and unknowns, which has made
me a better caregiver.
–Family Caregiver, northern California
1,665 ONLINE PARTICIPANTS
12 online classes 211 attendees
10 online webinars 860 participants
7 SUPPORT GROUPS HOSTING 129 CAREGIVERS
6FCA IMPACT REPORT 2022
Enhancing Awareness Among
Family Caregivers
In mid-2021, after 15 months of pandemic
caregiving, family caregivers’ health and
well-being were cratering. Many faced an
unrelenting horizon of continued isolation,
infection prevention, and health care
challenges for themselves and their care
recipients.
We knew that to help more caregivers, we
had to reach more caregivers—including
those who had not yet heard of FCA. Here
are some ways we engaged new and
existing caregiver clients over the last year.
BRAND REFRESH
We modernized our logo, refreshed our brand and
launched an all-new website.
ANIMATED VIDEOS
We released an explainer video of CareNav
TM
, plus a series
of animated videos highlighting Caregiver.org in English,
Spanish, Chinese, Tagalog and Vietnamese.
10 NEW INFOGRAPHICS
Based on our most popular fact sheets — all translated
into 4 languages.
NEW & TRANSLATED FACT SHEETS ON A
RANGE OF CAREGIVING TOPICS
•
71 translations
•
8 new fact sheets
• 3 updated fact sheets
22 WEBINARS, VIDEOS AND SHORT
INFO VIDEOS
Added to our YouTube channel.
883 MEDIA MENTIONS
Featured in AARP, New York Times and MSN Money.
26,523 SUBSCRIBERS
Across 4 e-newsletters.
56,149 SUBSCRIBERS & FOLLOWERS
Across our social media platforms.
MORE RESOURCES FOR
DIVERSE COMMUNITIES
Resiliency
To meet the increased need of family caregivers
from diverse communities, we redoubled our efforts
to make resources and information available in
multiple languages.
All-new classes and events in Chinese,
Spanish and Tagalog
A new Spanish language e-newsletter
Dozens of fact sheets and videos translated
to Spanish, Chinese, Tagalog, Vietnamese
and Korean.
•
•
•
7FCA IMPACT REPORT 2022
Expanding CareNav
TM
to Improve Services
Throughout California
CareNav
™
was developed by FCA as the rst social-care record
system for family caregivers. In addition to providing key caregiver
information and support, CareNav data contributes to annual reporting
and evaluation by the California Caregiver Resource Center system, in
partnership with UC Davis.
Over 2019-2020, CareNav
™
was deployed and integrated across
all 11 California Caregiver Resources Centers (CRCs) as part of a
state-funded expansion of services for California’s 4.5 million family
caregivers.
Never before have social service organizations been able to access
so much aggregate data in real-time across such a large caregiving
population—or across an entire state. By year-end 2021, the platform
was already delivering valuable data insights at the individual and
population levels, enabling CRCs to improve service recommendations
and delivery, identify and mitigate risk for caregivers and better
support them—especially those from vulnerable communities.
See the 2021 report Picking Up the Pace of Change: Scaling Services for a Changing Caregiver
Prole for an in-depth analysis of the CRC expansion project and top ndings.
INNOVATION
2,414
intakes and calls for
information & assistance
“
I cannot believe what a difference FCA
has made in my life and in the lives of my
family members.
–Family Caregiver, San Francisco County, CA
WHAT IS CARENAV?
CareNav is a free, secure online tool that uses information
provided by caregivers to customize a user-friendly
dashboard loaded with personalized caregiving resources.
8FCA IMPACT REPORT 2022
WHAT IS BEST PRACTICE CAREGIVING?
Best Practice Caregiving is an online database of 44
evidence-based dementia caregiver programs. It’s
searchable, free and easy-to-use.
To learn more, visit the BPC site.
Innovation
A BPC SITE FOR FAMILY
CAREGIVERS IS NEXT:
Inspired by BPC’s successful launch,
partner organizations are developing
a site targeted to individual family
caregivers. It’s slated to launch in 2023.
38,868
users
181,943
page views
40,274
LinkedIn impressions
54,305
sessions
147,236
Twitter impressions
9,805
reached on Facebook
Launching the Nation’s First
Database for Dementia Caregiving
Best Practices
Family caregivers of those living with
dementia are twice as likely as other
caregivers to report adverse effects of
caregiving on their physical and emotional
health, nancial situation and personal
relationships.
To improve accessibility of services for these
caregivers, FCA partnered with Benjamin
Rose Institute on Aging to create Best
Practice Caregiving (BPC), a groundbreaking
online resource. Three years in the making,
the site launched in January 2020.
Now, for the rst time, health care and
community service organizations, providers,
funders and policy makers have a
comprehensive, one-stop resource to learn
about, compare and adopt top dementia
caregiver programs that are implementation-
ready and proven to improve caregivers’ lives.
BEST PRACTICE CAREGIVING SITE ACTIVITY
9FCA IMPACT REPORT 2022
Serving More Caregivers Through Partnerships
In addition to assisting family caregivers directly with resources and
support, FCA works with partners to strengthen caregiver assistance
at the local, regional and national levels through collaborative
programs and initiatives.
In partnership with organizations such as state Area Agencies on
Aging, universities and nursing schools, health systems, state health
departments and dozens of other government agencies, foundations
and peer organizations, we’re extending our reach to improve the lives
of family caregivers and the people who receive their care. Here’s a
look at some of our key partnership initiatives in 2021-2022.
PARTNERSHIP
Caregivers Count Conference, an
annual event for friend and family
caregivers in the Bay Area covering
a wide range of caregiving topics.
Stanford University’s Parkinson’s Caregiver
Support Group Leader Denise Dagan joined
a panel discussion following a special
screening of the documentary “SPARK:
Robin Williams and his Battle with Lewy
Body Dementia,” in partnership with the
Brain Support Network.
Pictured: Denise Dagan
Panelist Veronica Bedon of AARP
joined a discussion following a
screening of the Spanish-language
documentary “Enid & Mami,” which
offers a glimpse into the humor,
honor and hardship of being a family
caregiver.
Pictured: Veronica Bedon, AARP
“
I have profound gratitude for FCA—the
services I received are exactly what I
needed, at the right time, and promptly
provided. Contacting FCA was one of
the best decisions I’ve made during the
[caregiving] process.
–Family Caregiver, Alameda County, CA
10FCA IMPACT REPORT 2022
PARKINSON’S DISEASE & LEWY BODY DEMENTIAS
In this NIH-funded project, FCA is part of a research team
assessing digital delivery of support services to family
caregivers of adults with Parkinson’s and Lewy Body
Dementias across 24 service sites nationwide.
FAMILY CAREGIVER SUPPORT
FCA is facilitating listening sessions, caregiver interviews
and other forums to generate insights, data and
recommendations that inform caregiving reports by local
government agencies.
CARENAV™
UC Davis researchers are examining assessment and service
usage data pulled from CareNav to evaluate the California
Caregiver Resource Center system.
Partnership
Leveraging Research to Better Serve
Present and Future Caregivers
Improving support and services for family
caregivers requires a deep understanding
of their lived experience, including their
needs, caregiving tasks, family situations,
challenges and more. That’s why FCA
has a long history of collecting caregiver
voices and perspectives—through
thousands of intake conversations and
interactive events, panels and classes, as
well as more formalized research projects
featuring listening sessions, focus groups,
surveys and interviews.
As a pioneer of data-led research in
the caregiving space, we track not only
the needs and challenges of individual
caregivers but also the caregiving trends
at both the community and regional
levels. As an advocate for all caregivers,
we bring the voice of the caregiver to the
table to design programs, craft policy and
embark on partnerships that will advance
the caregiver cause at local, state and
national levels.
LOOKING AHEAD:
FCA recently partnered with the USC
Family Caregiver Support Center to
launch the California Coalition on Family
Caregivers. This broad coalition of
caregivers and organizations will amplify
the voice of family caregivers in the state
capitol and in local communities as we
work towards a vision of supporting
caregiving families throughout the state.
11FCA IMPACT REPORT 2022
The mission of Family Caregiver Alliance is to improve
the quality of life for family caregivers and the people
who receive their care.
OUR PROJECT PARTNERS IN 2022
Alzheimer’s Association
AARP
Benjamin Rose Institute on Aging
Betty Irene Moore School of Nursing at UC Davis
Brain Support Network
California Caregiver Resource Centers
Community Tech Network
The Gerontological Society of America
The Hummingbird Project
Kimochi
Lewy Body Dementia Association
Memory and Aging Center, University of California, San Francisco
Mission Hospice
Openhouse
Tight Knit
Healthy Brain Initiative | Santa Clara County Public Health Department
Self-Help for the Elderly
SteppingStone
FCA Staff 2021
CREDITS:
All caregiver photos by Saul Bromberger & Sandra Hoover Photography
Photo on Page 5 by Julia Solonina on Unsplash
Graphic Design by Project6 Design, Inc.
To learn more about our work and services, visit caregiver.org.
235 Montgomery Street | Suite 930 | San Francisco, CA 94104
800.445.8106 toll-free | 415.434.3388 local
See our funding partners on our website.
